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One of the first successfull alternative treatments for mycoplasma's
Thursday, January 17 2002 - Filed under: General

> I want to ask you something:
> Is it OK if I publish your last two mycoplasma mails on www.newtreatments.org.

Sure, you can use them, but I think it is very important that people
always try to get tested properly by PCR first and try to get a proper
treatment using a protocol similar to Nicolson's since that is the only
treatment that is documented as being effective, before trying any
alternative routes of treatment.

The fact that I have been helped doesn't prove that my approach will be
effective in other cases. It is something that can be tried if other
options fail. Testing should be done prior to any treatment, alternative
or traditional, otherwise they will not know it they have the bug. The
test will fail to detect anything. And without any positive tests, it
can be very difficult to get any treatment.

There is a lot of knowledgeble people who think that it is impossible to
treat mycoplasmas without long term antibiotics. They may right. I
currently disagree but I have no proof to support my belief.

> I hope I didn't freak you out with my recent posts to the list. (The
> info on the mycoplasma, created by the US army *is* freaky)

You didn't freak me out at all. There is a lot of research to back up
the point that mycoplasmas may be important causative organisms or
cofactors in many complex illnesses.

A good introduction by two experts in the field is:
Mycoplasmas: Sophisticated, Reemerging, and Burdened by Their
Notoriety:

www.cdc.gov/ncidod/EID/vol3no1/baseman.htm

You might have read it already.

They briefly mention the link to Crohn's disease.

Reading Garth L. Nicolson published research at www.immed.org is also
a good idea, as you already know.

I might as well tell you about my own experiences, in case it may be
of some help...

It started when my father was diagnosed as having ALS. While caring
for him, several members of the family contracted a flu-like illness
which also caused neurological symptoms including muscle twitching.

This didn't make any sense at that time. Later when I stumbled onto
some info that Garth L. Nicolson was in the process of publishing a
paper about the finding a high incidence of mycoplasma fermentans and
an enterovirus in the spinal cord of ALS-patients, it made more sense.

www.immed.org/publications/autoimmune_illness/XIVB5-ALS.html

Since then I have struggled to get some treatment for my family. We
suffer from gastrointestinal problems, rheumatism, fatigue, brain fog,
asthma, muscle ache, muscle twitching etc.

My son has also had mild autistic periods.

Getting tested for mycoplasma in Sweden turned out to be impossible.
Getting adequate treatment was not possible either. When the short
antibiotic treatments ended, there was little relief.

I opted for an alternative treatment, which consisted of

1) A diet to rob the bugs of nutrients and support the Th1 branch of
the immune system
2) East Park d-Lenolate olive leaf extract.
3) Bromelain for amplifying the effect of 2) and for ''blood thinning''.
4) Occasional niacin flushes to make 2) and 3) reach further through
vasodilation.
5) ImmunePro undenatured whey protein for a number of
very good reasons.
6) A number of anti-oxidants, minerals, vitamins for free radical
protection etc.
7) Avoidance of excitotoxic substances like glutamate.
8) Methylcobalamin B12 for protection from excitotoxicity.
9) ''Virgin'' Coconut oil to suppress various virii among other things.

I did not know what was safe to give my son who is only 5 years, but
decided to try 1), 2) and 9) and it has really helped him. He appears
to have recovered. The diet was very important but has not been enough
by itself. The East Park d-Lenolate olive leaf appears to help a lot
with gastrointestinal and respiratory problems.

I required the whole set 1-9 above to get a 75% improvement. Now I am
under treatment for Chlamydia Pneumoniae using heavy doses of
vibramycin. It appears to help.

I am more comfortable with the thought of continuing my alternative
treatment indefinitely than years and years of antibiotics, which in
many cases still doesn't eradicate the mycoplasmas fully. I think a
shift from a Th2 dominated immune system (allergies, low capacity to
combat intracellular infections) to Th1 is vital.

In case you decide to explore the possibility that mycoplasmas (and
rickettsias, chlamydias etc) have something to do with your problems,
I can recommend the following sources of information:

Archived pdf version of website managed by Ken Lassesen:

lassesen.com/cfids/idefx.zip

(3.77 megs). It is 599 pages if printed in full.

He is in the process of relaunching the website here but there isn't
much there yet:

lassesen.com/cfids/contents.htm

Website by Nico Vanden Eynde - Research on Chronic Mycoplasma
Infections:

www.cfsresearch.org/mycoplasma/index.htm

A Consumer's Guide to Immune Restoration - The Search for ''Th1'',
Mark Konlee, Positive Health News, Report No 18 Spring Issue (1999):

www.execpc.com/~keephope/report18.html

Not to worry. These bugs can be squashed.

Best wishes,


> Your recent email to Ed in Netherlands on mycoplasma interests me,
> especially the following I opted for an alternative treatment, which
> consisted of
>
> <1) A diet to rob the bugs of nutrients and support the Th1 branch of
> the immune system >
>
> Would you be so kind as to tell me which diet you used, not to list
> everything, of course, but the common denominator of the diet. ''

It is a little difficult to find a common denominator but I will try
to describe the diet. I guess it could be described as a
semi-paloelithic diet plus some dairy and with Mediterranean and
Asian influences.

No bread.
Very little grains.
High protein.
Grass fed meat.
Fish. I pay attention to the Omega-3 to Omega-6 ratio.
Berries, fruit and vegetables with high antioxidant capacity.
Almost no vegetable oils besides extra virgin olive oil and ''virgin''
coconut oil.

To this I add a lot of the suggestions that can be found in Mark
Konlee, Positive Health News:

www.execpc.com/~keephope/phn.html

Especially the instructions in:

A Consumer's Guide to Immune Restoration - The Search for ''Th1'', Mark
Konlee, Positive Health News, Report No 18 Spring Issue (1999):

www.execpc.com/~keephope/report18.html

On the other hand, an excessive Th1 immune response in the gut appears
to be associated with Chrohn's disease and an excessive Th2 immune
response appears to be associated with Ulcerative Colitis:

jama.ama-assn.org/issues/v285n5/fpdf/jsc00345.pdf

So the fact that I have been using turmeric, containing curcumin, as a
spice but not in large quantities, may have prevented an excessive
immune response - inflammation - locally in the intestines. I am
speculating here. I am not that well informed about Chrohn's or
Ulcerative Colitis to dare make any recommendations about therapies.

I also add other things:
Cilantro for chelation of mercury and other metals.
Digestive enzymes - bromelain and papain.
Probiotic bacteria that has documented beneficial effects on immunity:

Lactobacillus acidophilus
Lactobacillus casei
Lactobacillus plantarum
Lactobacillus reuteri
Lactobacillus rhamnosus GG
L. rhamnosus 271
L. rhamnosus LB21
Lactobacillus lactis L1A
Bifidobacterium lactis
Bifidobacterium longum

I try to avoid exposure to substances that can affect the endocrine
system like plasticizers in plastics and Biphenyls etc that get into
the food from food packaging.

My diet is most likely not SCD legal but approaching it. When I get
Breaking the Vicious Circle, I am hoping I will be able to reduce the
SCD-illegal items and get even better results.

For protection against excitoxic damage I believe it is important to
maintain stable blood sugar levels. This may also be a good thing for
the immune system. There are some interesting articles in ''DIET
PREVENTS POLIO'', Benjamin P. Sandler, M.D. 1951, The Lee Foundation
for Nutritional Research at:

www.whale.to/v/sandler.html

Where he claims that a high protein diet with no sugars and starch
will maintain stable blood sugar levels and even offer very good
protection against polio. It is backed up by references and
experiments.

I try to maintain stable blood sugar levels by eating high protein
meals a minimum of three times a day, eat a lot of coconut oil that
appears to give me very stable blood sugar levels and for some reason
a feeling of breathing deeply and easily. Other coconut oil users have
reported the same phenomenon. I also use cinnamon frequently.

Coconut oil also cranks up the metabolism, and together with cayenne,
this helps me to keep my body temperature up, which is important for
immune function.

Sandler also says that high protein meals stimulate oxygen absorption,
if this is correct it is good news for us and bad news for
mycoplasmas.

www.whale.to/v/sandler11.html:

''... Benedict and Carpenter. These workers determined the
minimum (basal) oxygen requirements of normal human subjects and
then measured the oxygen consumption of these subjects after
various test meals of sugar, starch, protein, and fats, alone and
in combination.

After a protein meal they always observed a marked rise in oxygen
absorption (consumption), a phenomenon called ''the specific
dynamic action'' of protein and which is regarded as highly
beneficial to the body. After a fat meal there was a slight rise
in oxygen absorption or none at all. After sugar and starch they
found a slight initial rise followed by a fall in oxygen
absorption in some experiments, and in other experiments they
observed a consistent fall in oxygen absorption, with no initial
rise. Benedict and Carpenter were unable to explain this fall in
oxygen absorption after sugar and starch. They were much
surprised to discover that the ingestion of sugar and starch
actually could cause a depression of total bodily oxygen
absorption below basal requirements.''

I believe that the combination of a number of virii and mycoplasma is
particulary harmful and I try to suppress both virii and mycoplasma.
I also believe a lot of virus replication occurs in the intestines,
so any approach that reduces the viral load in the intestines would
be good news for the immune system. Because of this I am ingesting:

- Vinegar, kills viruses with a lipid layer, may be effective against
mycoplasma, but I don't how far down the tract.
- Coconut oil, forming monolaurin and other monoglycerides and
free lauric acid, kills viruses with lipid layers, may be effective
against mycoplasma, how far down the tract depends on a number of
factors but I would assume a large dose would reach further.
- Oregano and other herbs and spices with similar properties.
- Food with a high lysine to arginine ratio.
- Olive oil, olives and olive leaf extract.

Th1 stimulation by diet would be pretty ineffective if the most
important Th2 inducers are not eliminated, which I believe is food
fried in polyunsaturated oils and hydrogenated oils. Especially french
fries and similar food from fast food restaurants, alcohol and sugar.

E. wrote:

> As far as supporting the Th1 branch of the immune system,
> what particular diet would do this more than making
> sure that the immune system had available all the nutrients
> it needs?''

The proportions between Omega-6 and Omega-3 fatty acids are very
important. To much Omega-6 will lead to Th2 dominance of the immune
system. Decreased intake of antioxidants may also lead to Th2
polarization of the immune system. I guess this would lead to a diet
with much less Omega-6 for most people and increased consumption of
berries, fruit and vegetables with high antioxidant capacity like
blueberries, blackberries, spinach, strawberries, carrots, vitamin-C
rich food and perhaps more high quality meats from grass fed animals
giving more Alpha Lipoic acid and CLA.

This very interesting review mentions this in more detail as well as
other factors contributing to a dominance of the Th2 arm of the immune
system causing allergies, asthma etc etc:

Stranneg?rd and Stranneg?rd Departments of Clinical Virology and
Pediatrics, Faculty of Medicine, G?teborg University, G?teborg,
Sweden:

Review article - The causes of the increasing prevalence of allergy:
is atopy a microbial deprivation disorder?

immuneweb.xxmc.edu.cn/progress/891.pdf

E. wrote:

> The last time I met Garth L Nicholson was at Oxford where he
> delivered a talk on Gulf War Syndrome. I did not realize he was
> into ALS as well.''

He is into Autism as well:

www.immed.org/whatsnew/news00-3-27a.htm

And appears to have a politically incorrect opinion about vaccinations:

>
> www.immed.org/reports/autoimmune_illnessCriminal_Politics_Vaccine_=Contraversy.htm
>

I have nothing but the highest respect for Garth L Nicholson.

E wrote:

> Mycoplasma have been studied in relation to gut mucosa and
> diarrhea in children. You might find it interesting to look up
> some rather old work of J. Ranier Poley of the Dept. of
> Pediatrics and Electron Microscopy in Eastern Virginia Medical
> Hospital and Children's Hospital of The King's Daughter in
> Norfolk, Virginia. Dr. Poley has done remarkable work showing
> that the microorganisms including Mycoplasma adhere to the mucous
> coating of these sick children's gut thereby destroying the
> microvilli and disaccharidase activity. His work can be found in
> ''Chronic Diarrea in Children edited by E. Lebenthal and published
> by Nestle/Vevey/Raven Press.''

Thank you for your suggestions. I will look into it.





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